 |
Report by The Abigail Alliance Patient Advocacy Committee
Rose Winkle, Chair | GBM Patient & Advocate | St. Louis, MO
Kyle Coddington, Vice Chair | GBM Patient & Advocate | Boswell, PA
Corey Polen | ALS Patient & Advocate | Brownsburg, Indiana Jeremy Van Tress | ALS Patient & Advocate | Corvallis, Oregon
Dr. Benjamin Freilich | Physician & GBM Patient Advocate | Englewood, NJ
Dr. Jim Neely | Physician & Colon Cancer Patient Advocate | Cameron, MO
Frank Burroughs | Head & Neck Cancer Patient Advocate | Lorton, VA
Steve Walker | Colon Cancer Patient Advocate, | Tampa Bay, FL
|
 |
Since 2001, the Abigail Alliance has fought for wider access to experimental treatments. We are a 501(c)(3) that advocates for people with life-threatening illnesses.
|
Tuesday, January 21, 2020
The Freedom of Treatment Act: Empowering Terminally-ill Patients to Try Experimental Drugs and Therapies
Thursday, January 16, 2020
Support the Freedom of Treatment Act
State and federal Right to Try laws provide important protections to physicians and drug companies that help terminally-ill people try investigational therapies outside of clinical trials. Unfortunately, patient access has been limited up to this point due to ambiguities in the law.
The Freedom of Treatment Act is model legislation that clarifies the basic rights of people with terminal illnesses who have run out of treatment options.
The Freedom of Treatment Act is model legislation that clarifies the basic rights of people with terminal illnesses who have run out of treatment options.
Sunday, January 12, 2020
Guest Column: People with ALS Need More Treatment Options
By Matt Bellina |
Matt Bellina is a father, Navy Veteran, and patient advocate who is receiving an experimental treatment under the new Federal Right to Try law.
Matt Bellina is a father, Navy Veteran, and patient advocate who is receiving an experimental treatment under the new Federal Right to Try law.
 |
Caitlin Bellina and Jim Worthington stand with Matt Bellina for the National Anthem before The 2017 Rock 'n' Roll Philadelphia Half Marathon | Photo by Helga Proudfoot
|