Monday, February 25, 2019

Support the Research Subject Bill of Rights

State and federal Right to Try laws provide important protections to physicians and drug companies that help terminally-ill patients access investigational therapies outside of clinical trials. Unfortunately, the rights of patients under the laws are ambiguous. The Research Subject Bill of Rights is model legislation that protects the basic rights of people who are seeking access to experimental treatments.

Our model legislation gives terminally-ill patients the right to:
  • Bypass clinical trial sponsors and manufacturers that refuse to provide access to treatment outside of clinical trials
  • Be fully-informed of their treatment options before deciding whether to participate in a clinical trial
  • Obtain coverage for the direct costs of access to investigational treatments

Click here to read the legislation. Comment below if you have any suggestions, questions, or concerns.